Welcome Back Vet - Biting Back at BFS

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inzTwoToneTunes

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I am a vet that has not been around for awhile. Sorry but sometimes life gets busy. Just wanted to say hey and encourage everyone to stay strong and battle thru. I continue my same old BFS journey with its ups and downs. The best advice I have is when BFS bites, bite back. :) Last month I had a pretty good flare but I never got worried. I just put on my headphone with some high octane music and punished my exercise bike until my legs went numb. I cussed out BFS the whole way. :mad: I thought about everyone who may be fighting the crippling fear of als right now. I remember how bad I was for a couple of years. I do know what your going thru and it SUCKS! But you will get passed it. I may never be the same. I can't play the sports that I used to. I have neuropathy that is a bummer. I twitch everyday, some days worse then others. I have days where my hands feels numb and muscles do not work right......................................... But now I focus on what I can do instead of what I can't. It took a long time but I got there.Take the next step in your recovery from this crap.BTW some good songs to punish BFS are; * Skillet "Monster"- * Pat Benatar "All fired up" - * Red Rider "Lunatic Fringe'- *Foreigner "Juke Box Hero"- *Guns n Roses "Welcome to the Jungle" *Nirvana "Smells like teen spirit" and pretty much anything by Metalica. If your really desperate maybe some Limp Biskit or Linkin Park but that is last resort because they have a little to much cursing for my taste. ;) BlessingsDD
 
Hi DD :)Nice to hear about an oldtimer:) I am sorry that you still have these BFS "attacks". Right at the moment I have some problems, not with fear of ALS but I try to face the fact that this might be here for a longer time (hopefully nut forever), and although the twitching doesn't bother me anymore as long as it is not my face (this is so irritating, I cannot really concentrate when my tongue or lip is twitching....not to talk about theeyelid ones..), it is the other stuff bothering me.My fatiegued and painful arms and hands make me mad every day, especially when I again need meds to be able to do my work..some days I have problems with my legs so bad I can hardly play with the boys, and if we are doing something outside with the kids/friends , I hade a "I have to leave earlier-rate" of 100% so far, because the cold temperatures make my body one single hurting something..I loved swimming, but the cold water is not doing me any good...I hope I will reach your point, that I can focus on what I can still do instead of what not. I am trying and won't lose my humor, and I am workink hard to follow you on your path :) I still can do most of the things, and I know I won't die from this, so I guess it is a task that can be handled. And..summer will be coming and wipe some of his crap away. So thanks for posting DD, I think it is for sure important to give reassurance for those still fighting the anxiety, but I like the posts about not only to fight the anxiety , but also the frustration that comes about the pain after you have lost your fears.
 
I was wondering what happened to you. Thanks for the update.From your song suggestions, I am guessing you came of age in the 80's like me! (born in 1971...)
 
Hey everybody. Yes I dated myself right there. Born in'69!. Long feathered hair, tight jeans, Bon Jovi, Motley Crew, Pac-man, and very tight parachute pants. :D) Oh and one huge crush on Debbie Gibson :oops:
 

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