Twitching Toes: Is it BFS?

BarbiePetals

Well-known member
Ok, I tried to use the search for this question but couldn't find anything. Maybe I'm doing it wrong. Anyway, does anyone have their toes move on their own? I am really starting to get really scared again. My toes especially my big one will twitch on their own. Is this normal with BFS? Sorry if this has already been answered. Thanks.
 
Very very normal.When I saw a neuro and told him about my moving toe (the big one of the five - dont know its name in english), he stated that "ALS doesnt show itself with a moving toe. No. No. No. Its nothing like that". You just let your toe move a bit from side to side once in a while. And when you think about something else, it stops and you almost misses it. Actually it feels pretty funny. Dont you think? Hey, I want my moving toe back! :LOL:
 
Barbie, my toes move around all the time! If I stand on the outside of my feet, my toes twitch all over the place. Sometimes, when shaving my legs, foot up on the side of the tub, yep. Moving toes. Sometimes they move just because they feel like it, but mostly when my feet are flexed in some manner. Since I am currently terrified at my constantly twitching, aching, shaking hands, I almost forgot about the toes. Thanks for reminding me ;) Becky
 
**grabs leslie's hands and yanks her back from the cliff** No no no stop stop stop!! You KNOW that it doesnt matter where the twitch is! Stop analyzing right now missy! I refuse to let you do this to yourself again after how far you have come this last week!! Sing a song really loud and laugh at yourself, run around you house 10 times, PM me, twirl in circles til you are dizzy (just dont puke)...do ANYTHING but look at your toe (I know you wanna right now!) before I get the garden hose and spray your worrying butt with cold water! LOLOL I'd never do that! Well I might if you dont knock it off! ;)
 

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