Tongue Twitching: BFS or Anxiety?

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bfhopeful2

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On Thursday my tongue twitched on the left side in one spot for like 4 hours, dissapeared and now this morning it is back again in the same spot. I really don't know what to think of this. All the research Iv'e done says it can be bfs and anxiety, but my doctor doesn't beleive in benign tongue twitching. I really don't know where to go on this one.
 
Hi BFShopeful. I am sorry to hear about your new symptom. I personally do not get the tounge ones yet, but I am still only 15 weeks in. I know a couple people on this forum who also get them and are concerned. Tounge twitching is a hotly debated topic it seems. however I have seen numerous people on this forum that complain about them. Are you having an increase in general twitching as well? If not, then I would lean heavy towards it meaning nothing. if so, then I would report the symptom to your neuro and see if he wants to see you again for reassurance after he does another clean neuro exam.
 
I've had tongue twitching since August. If your doctor doesn't believe in benign tongue twitching, tell him to come onto this board and read all the stories of people who have tongue twitching and a benign diagnosis. -MattP.S. My tongue twitches everyday, from flutters on the sides, to zaps in the middle, flickers, big ones way back, zaps on the very tip... you name it, I get it everyday.
 
My doctor is kind of old school I think, relying on the literature he learned in school. He is the specialist of choice in Florida though. People even fly in from europe to see him. I don't know, if he could just say it is bfs or anxiety related I would put it to bed.
 
You should really know better......tongue twitching is sooooooooooooo common in BFS, and none of the tongue twitchers here got bulbar or anything. I don't care what his reportation is and how many people fly there.....hundrets of neuros told people that everything that is a muscle can twitch in BFS , and so the tongue. Why should a person be "allowed" to twitch in all other face parts affected by bulbar muscles without concern and only the tongue has to be spared out? This makes absolutely no sense. Sorry, your neuro seems to be uninformed here. An I actually would not care what he "believes in"...this is no question of believe. it is a question of facts. This is not religion studies.
 
Your right and I do appreciate the tough love. Sometimes it is hard to handle. I have personal issues with ALS and I think it effects me more then the average. Thanks.
 
Yeah, just like everyone else said...your doctor isn't up on the latest if he doesn't believe tongue twitches can be benign. We let our anxiety force us to focus on individual symptoms incorrectly believing them to be sinister, all the while forgetting the truth about our condition. You already know that you have BFS and had it for a while. Tongue twitching among BFSers is all over the place. We know for a fact that BFS absolutely cannot "turn in" to ALS or anything like that. So do the math....
 
Thanks John...I do listen to what you say. You have been living with this far longer then I have. I know you mention that you have a lot of facial twitching, have you also had the tongue twitching that I describe in the past?
 
My boss told me today that as she was flying out to Chicago last week to lay someone off, she was extremely nervous and her tongue started twitching. She doesn't have BFS.
 
Well, twitching in common is also often caused by stess/anxiety. So there is no reason why a tongue twitch should not be able to be triggered by anxiety. My sister told me she sometimes has tongue twitches too (she does not (yet) have BFS, but is also (like me before BFS)someone who twitches more than average person).
 
Oh, I hope you could tell from my post that I did not want to offend you, but that I am really *beep* by the way some docs treat this. Instead of informing themselves about how it looks like to have BFS (which would be soooooooooo easy, just one google to about bfs.com), they look into their books and papers that may be covered with dust from the past 20 years and scare people to death.....Not ONE neuro that was not hit by BFS himselves ever came here to learn more about it....I am in contact here with a female doc from Emilyomousey who has BFS and lots of neuro doc friends and family....noone can tell her what she has , only that is it not ALS or MS, most likely some somatisation stuff...aaaaaaaaaaaaahrg....*beep* me off, why does no neuro want to learn about this????
 
Hey, you reassured me more than year ago when my tongue twiching had started. You told me your doctor had told you its "rarely benign", which I would interpret that "possible but have not seen it yet/much".I would believe the ci-author of Al Awaji criteria (replacement of El Escorial), prof.de Carvalho, who observed benign tongue fasciculations just once - but it is enough to say it exist.Ask your doctor - why he think it does not exist. I am sure he will not know beucase there is no medical explanation.Mine are less frequent now. Come on, after such a long time, you would see wasting and have speaking difficulties..
 
I know, it is easy to reassure someone when you are in that sane rational state. When it happens to you it is a different story I guess. My doctor did say it was rare, which in some states of mind I equate rare to possible and in others impossible. I know that I do play with my tongue ALL the time when I am stressed. I can't leave it alone. I clinch, I thrust, I bite, I move, etc. etc. I can't help it, it's like a tic. Plus I train jiu-jitsu hard which I get cholked a lot. A lot of pressue under the chin. Do you think any of this could cause hyperexcitibility in my tongue and make me more prone to the twitch when I am seriously stressed?
 
thanks for the link... most people with *** don't seem to feel their tongue twitching... do you feel it? can you see it?
 

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