saltandpepper
Member
Soo, I need to be talked down from the ledge...again. And I was doing soooo well since my neuro! I hate myself but I can't seem to shake this fear of bulbar...it's like now I'm WAITING for any sign of it to just completely freak out. It happened yesterday....drank my coffee but felt a tickle in my throat after each sip. This continued with liquids all day yesterday and I would have a sensation like I should clear my throat/cough for minutes after drinking. I know it's crazy. I can full on chug a glass of water in seconds but I have this lingering feeling after and it's only relieved by a cough or two a few minutes later. So, if this were really the bad stuff, I would not be able to swallow right without full on choking? It seems that this is the consenses on the board but you just see "difficulty swallowing" which is vague. I think that's my problem with bulbar in general....at least with limb onset, there are strength tests you can do and obvious things that would be wrong with you (atrophy, tripping, etc...). My neuro tested for all that stuff which reassured me but regarding bulbar she really only looked at my tongue so I dont' feel like she gave much consideration to it at all. Is it obvious with Bulbar too, I'm just looking for subtle signs to obsess over?It does help to remind myself that this crap started with a thumb twitch then all over twitching....which would prob not be how bulbar would present....but I can just as easily tell myself the two are not related....b/c I looooove to torture myself!