Rib/Stomach Twitching - Need Help

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constance41

Well-known member
well. last night i woke up at 5:00am with my whole left ribcage and stomach cramping. I dont know what to say anymore. I feel i am spiraling down a bad road. I went to my gp and he sent me for a CK test and i got my last amalgum filling out. this has me in the worst way. there arnt to many people on this board with rib and stomach twitching. as i type i just got a nice thumper in the side. I have lost another 5 ibs in last couple of days. my reflexes are through the roof. dont know if anxiety can really make your reflexes this bad. I feel like all the twitching and cramping are starting to win over me. my wife does not know what to say to me and i dont feel like this can go on much longer before my mind totally cracks. thanks all. u have been all great. KLAG
 
Klag,

A LOT of people have had stomach, back, rib twitches on this board.

Reflexes can change, literally, daily. Anxiety, meds, sleep can all affect your reflexes.

Didn't you just have a clean EMG?

Ginny
 
I have been at this for years now and my back and ribs have twitched - and my derriere, neck, something inside my ear, etc. Just about everything has twitched. My reflexes are very brisk and I must take inderal or my heart rate is through the roof and no one knows why. There is nothing wrong with my heart. Right now my face is driving my out of my mind and I am getting very little sleep, so I do think I can sympathise with you. I am frustrated beyond words. So much so that I am trying an anti convulsant drug which scares me because I feel I cannot cope with this anymore and I have to try something. When I get very anxious, as you are, I still forget that days like this are followed by some good days. When I have had 2 hours sleep and I am heading off to work after twitching the night away, I forget that some nights I do get to lie down and sleep. When you feel at the end of your rope - I was there Wednesday - it is easy to forget the days that aren't so bad. I am working on that.
Shirley
 
smallsarah, where are u from im in alberta (edmonton), canada, i am just about out of my mind. i am now up to 200 mg of neurontin. up to 300 next week. thanks for your post reply
 
Hey Klag,

You seem pretty upset and I really understand your fear and anxiety. I just wanted to let you know that my stomach and ribs used to twitch a lot. When this first started if I sneezed it would set all hell loose on my stomach. thump thump thump. Next Sunday is 14 months of twitching and I am still here with no additional problems but continuous twitching.

Hang in there. How long are you twitching now?

Did you have an emg as Ginny asked? If so you are very fine.

Peace,
Mark
 
hi mark, i had another emg of right foot, left calf, left shoulder. they all showed fasiculations. im at the 8 month mark today. i am having the worst weekened. i could not feel my left arm for awhile and left leg was bad all weekened. i dont know what to do anymore. my left shoulder has the crawly twitches everyday and wont stop. i want to see a light at the end of the tunnel but it seems so far away.
 
Hey 4evaypoppypassport,
I didn't respond to this post because I am one of the few and proud on this board whom you have already mentioned as having these abdominal and rib cage twitches.

Let me just say that my ribs were a hot spot for many, many months, AND I had a good deal of perceived trunk weakness, that didn't feel so much perceived at all.

I'm sure I've told this story before, but when I went for a spinal tap, the radiologist did the procedure under fluoro and I had to lie on my abdomen the entire time trying to push my spinal fluid out of a very small puncture he'd made in my spine. I pushed and pushed as if I were giving birth, but just didn't have any strength in me to bear down because I felt so intolerably weak in my abs. I think even the staff were frustrated with me, and I finally needed to stop and rest because I hyperventilated. :oops:

I also sing (sort of) and I had to cancel concerts because I didn't have the strength to stand or hold out the notes for any length of time. I could really barely even speak.

Oh, gosh, and I just had to add this- speaking of breathing fits, I didn't sleep for nearly a month because of those lovelies. These are also due to extreme stress and anxiety, because I barely ever have these anymore. But, back in the day I used to awaken gasping for air during the night, and so I could never fall asleep because I feared I was dying.

See? I was twitching AND feeling pretty darned weak and I'm 100% fine now. It was all just a really nasty exacerbation of bfs with lots (and LOTS) of stress thrown in. I didn't know at the time that bfs could cause such symptoms, and if I had, I wouldn't have lost any more sleep over it. I certainly wouldn't have subjected myself to a stinkin spinal tap. :crying:

My point? Stressing over what you do NOT have (**S, *S, or any other 'S') is not going to help your symptoms. Please try your very best to remember no matter how weird or strange or odd you feel symptom-wise that THIS IS A BENIGN CONDITION. (I'm not yelling, just emphasizing, 'k?)

Be in peace.
Blessings,
Sue
 
thanks suziQ i am having a barage of new things and it is getting me down. the new things really scare you as i havent encountered them before. the word benign is truly an understatement some times.
 
i get that zny444, i just came back from gp, i have found diffrences in my hand(dent), left leg difrent than right leg same as feet. However to my amazement my ck (muscle enzyme) was 97 well below 250 mark. dr said if i had any true atrophy happening it would be way above that number. i need to some how come to grips with this. for 3 days now my leg and foot have felt weird and when i walk leg and foot feel strange. really hate this stuff.
 
Hey Klag-

My foot and leg on my right side feel weird too! Sometimes my left leg but usually my right. IT scares me too. But Ive seen a number of people on here talk about that weirdness and no one seems to find anything wrong with them. I actually had my boyfriend measure the length of my legs because i thought my right one was shorter than my left! lol Thats how it feels. Rest easy. You've had every test come back perfect. You cant get any healthier! Try and stop focusing on your nerves and muscles and work on getting that mental strength back, because the physical strength is there!

Feel better!

*Jaime*
 
thanks jamie, i am tring to fight this. i hope we all can find some peace wiyh our crazy symptoms. how are u doing. hope u are well. peace to u.
 
Thanks for the info SuzieQ... I looked at the CK total on my bloodwork and its within range (71). The range is 0-200... I guess thats a good thing!? But wouldn't that only be higher in later stages of a Muscular disease? Like after all your muscles have gotten small?
 

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