Inducing Tongue Twitches - Video

Highlights Only
Hmm does not look like fasciculations, rather than contractions of glossal muscles. Fasciculations would be rapid flickering of very small location (like 3x3mm). This is slower, at least from what I can see. It is helpful to capture it under tangential light so you can clearly see the contures twitching.On the youtube, you can find true fasciculations in ALS patients. The benign ones would look the same in their appearance.
 
Tdoc,I wish you would stop posting stuff like this on here. I have all different types of tongue twitches including the ones in your video so I don't think you can say that this is what motor neuron disease looks like. -Matt
 
BobJazzy, this is not about fasciculations being ALS or not, that video just shows true fasciculations. I have the same, twitchplaysp had the same type on his video. Sorry if it made you think this is how ALS looks like. I edited the post to make it clear.
 
Matt my tongue does the same thing, and NO ONE on this board should be looking at ALS videos of their tongues....no one here has that horrible disease and twitchy doc u have been twitching foryears haven't you?? Let the fear go....just my opinion...Shannon
 
Yeah, I can induce my tongue twitches by forcefully sticking out my tongue, by pressing it against the teeth, hitting it etc. And I don't need to because there's a constant flickering at the tip of it. I've had this for many years (six, the constant one for 14 months).Could we now please stop obsessing about tongue twitches? After all, the tongue is just another muscle and I can induce twitches in other muscles if I forcefully stretch or hit them (and probably press them against my teeth ;) too.
 
Thanks guys. I initially posted my video just to show people that their twitches are not worrisome. As a matter of fact, I just received my documents from the Mayo Clinic. Here was their impression:"Fasciculations. This is most likely benign fasciculation syndrome."So the point I was going to make was that if my tongue does all this and my body twitches 24/7 with every twitch you can imagine and the Mayo clinic looked me over and diagnosed me with BFS, then other people should not worry about the location or the frequency of their twitches. That was going to be my point. -Matt
 
A fasciculation /f??s?kj??le???n/, or "muscle twitch", is a small, local,involuntary muscle contraction. Your tongue-thing is not a fasciculation. When you press your fingers hard and then make a fist, look at your handpalm - the space under your thumb - you will see the same effect.
 
Matt, you've been a big help to people on here who haven't had the comprehensive work-up you had at Mayo Clinic yet have similar symptomsMay I ask - do you still get anxious about the twitches, do little doubts ever creep in? I wish my mind was stronger and I could let the fear go but the twitches still affect me (my mental state, physically they have zero affect) - I am still having trouble coping with the uncertainty they bring, the constant reminders of an awful neurological disease despite the fact it's very unlikely
 
Interesting... no coffee today and I can't induce the twitching anymore. Petrifiedguy, I don't have any anxiety about ALS anymore. Today marks 10 months since I first noticed my calf muscles twithing away. Things quickly got much worse for me and in the past few months, some symptoms have disappeared. I no longer struggle to sleep, I don't get involuntary jaw jerking anymore, some of my hotspots have calmed. My twitching, however, seems to have progressed over time but its just twitching, its harmless. It took a while for me to finally get what the vets had been telling me all along. ALS is very obvious when you walk into a neuro's office. So if a neurologist gives you the "all clear", and better yet, if you've been sent for an emg and that was also clean, then your twitches are not from a neuromuscular disease. So I know what you're going to ask next, "Well, what if this is the start of something nasty?". Well, I think the answer to that question is right here in this forum. Look at all the people on here over the years who have complained about nonstop twitching, cramping, feeling a lump in their throat, people worried about dents but yet they can still function normally, people thinking they had their emg too early... aaaaalll the BFSers who been told by their neuros that this is benign. Sift through them all and tell me how many of them came back to say that their BFS turned into something else. I've searched for them, and I have not been able to find any. Personally, that answers it for me.One last question that seems to come up... "Well, what about that Walton Study that talks about those rare cases where someone was diagnosed with BFS and later had MND?". For the record, I hate that study. This has been discussed at nauseum, but here's my take on that. I'm a numbers guy. No one knows how common BFS is. Mayo says they see "lots" of people who twitch like me. Some neuros say they see BFS a few times a month or once week. However common or uncommon it is, there is absolutely no medical evidence to suggest that BFS can turn into something else. This board is proof of that. So assuming the two conditions are completely separate from each other (which is a good assumption), there STILL should be a very small number of people who have BFS and later get diagnosed with ALS. Just like there will be people who have IBS and later get diagnosed with ALS, or migraines. In the last 30 years of medicine, I believe there are fewer than 20 written cases of this. Does it surprise me that they found 20 people all over the world? Not at all. Statistically, they probably should have found more. But it certainly doesn't prove that having BFS puts you at any greater chance of develping ALS than the average Joe. Just my opinion.-Matt
 
First of all, Matt called it a twitch not a fasciculation. And that is what I see...a twitch in his tongue. For my personal experiences BFS is NOT always only about (true) fasciculations but-oher than MND-our hyper muscles do all kinds of stuff that can be felt and/or seen . This includes of course true fascists, odd tensing up of muscles, tremors, jerking, vibration of a whole body part or only little spots and small twitches like this one. This can go from very tiny units (fasciculations that are the only things found in BFS that can also appear in MND!) to a whole muscle contracting causing a whole limb to move. And in between all those extremes there are all kinds of SURELY NOT MND RELATED THINGS. So anyone that has bigger movements of muscle groups like jerking,(resting) tremors, vibrations and sleep starts can relax loooong before being checked by a doc, those things are classical for BFS and not part on ALS. Never ever. It is a different thing , totally. I agree that this does not look like a typical fasciculation but more like a twitching of a little bigger group of muscle fibers.I guess in an EMG, this probably would not even show up as a fascist. I had something odd in my finger,kind of a "rebound twitch" from tensing a muscle in a certain way....my neuro said that my hyper nevers set some muscles into a state of "benign dystonia", so I get all that stuff. But nevertheless stuff like that is typical for BFS, the range of odd things is much broader than in MND. Our nerves are totally freaked out and play on our muscle fibers like on a piano....
 
Sometimes I feel that my tongue is fatigued, especially while or after eating, but it can also happen at any other time, e.g. when I wake up in the morning (I didn't eat anything today and I feel that my tongue is tired or tense). I remember having "this problem" a couple of months ago and then it just went away... and now here it is again... I'm not worried about the bulbar thing, but I was wondering if this feeling of tongue tiredness was "common" among bfs sufferers. Do you guys ever experience what I'm talking about?Could this be related to neck tension!?
 

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